Recently, I've read a few scholarly papers and seen some YouTube videos about BIID. The more I read, the more likely it sounds like it's going into the new DSM next year. That means that it's recognized as a real thing. And if it's real, there can be attempts at treatment.
I have no doubt that the pharmaceutical companies will set up protocols for drugs that already exist. Because we are, at the moment, known to be a small population, I wouldn't expect that there would be a great wave of companies out there trying out their old antidepressants for a "new" illness. Besides, we already know they don't work.
At my age, (late 50s) I realize that surgical treatment will not come in my lifetime. I'm okay with that. And no, I am not willing to pay tens of thousands of dollars to find that surgery elsewhere.
My first small hope is that there would be an experiment - I know, a very non-technical word and no doubt a little off-putting - for people needing paralysis. I would gladly volunteer for nerve blocks on the sciatic and femoral nerves.
To get my legs out of the way for two hours, while I'm awake...I can't help but think it would allow me to focus on something other than that. The buzz is always in the background, except when I spend a lot of time in my chair. What a tremendous relief that would be.
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